A the development of hospice care for children
When the first edition of A House Called Helen was published in 1993, there were only a handful of children's hospices in existence, all of them within the U.K. . There are now more than twenty in operation, and a significant number at the project stage, in the U.K. alone, and children's h...
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Ngôn ngữ: | Undetermined English |
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Oxford,New York
Oxford University Press
2000
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Thư viện lưu trữ: | Trung tâm Học liệu Trường Đại học Trà Vinh |
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LEADER | 02617nam a2200277Ia 4500 | ||
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001 | TVU_11300 | ||
008 | 210423s9999 xx 000 0 und d | ||
020 | |a 0192632353 | ||
020 | |a 9780192632357 | ||
041 | |a eng | ||
082 | |a 362.175608309425 | ||
082 | |b J19 | ||
100 | |a Worswick, Jacqueline | ||
245 | 2 | |a A | |
245 | 4 | |b the development of hospice care for children | |
245 | 0 | |c Jacqueline Worswick | |
260 | |a Oxford,New York | ||
260 | |b Oxford University Press | ||
260 | |c 2000 | ||
300 | |a 268 p. | ||
300 | |b ill. | ||
300 | |c 22 cm | ||
520 | |a When the first edition of A House Called Helen was published in 1993, there were only a handful of children's hospices in existence, all of them within the U.K. . There are now more than twenty in operation, and a significant number at the project stage, in the U.K. alone, and children's hospices have been set up in Canada, the U.S.A. , Australia and continental Europe. The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established and the growth in the number of children's hospices has seen corresponding important developments in the field of paediatric palliative care. This book provides an authoritative account of how Helen House came into being. It records the events surrounding the foundation of the hospice and how it stemmed directly from what was learnt from the events following the sudden illness of the author's eldest daughter Helen, after whom it was named. The book sets out the philosophy which underpinned the hospice, which was taken up as the guiding philosophy of children's hospice care. It describes the hospice's operational framework and details the service provided by Helen House, which is widely cited as a model for children's hospice care worldwide. It provides valuable insight into the needs of the families who use hospice services and touches both on the difficulties they face caring, often over a long period of time, for a child with a life-limiting illness, and on the role and attitudes of professionals and indeed of the public at large. In this new edition an additional chapter reviews the growth of children's hospices and reflects on the challenges they face in their maturity. It considers the development of children's hospice care in relation to wider service provision and examines current and future issues surrounding the care of children with life-limiting illness | ||
650 | |a Hospice care; Terminally ill children | ||
700 | |a Jacqueline Worswick | ||
980 | |a Trung tâm Học liệu Trường Đại học Trà Vinh |