Ethics, Law and Governance of Biobanking: National, European and International Approaches
Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical...
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| Ngôn ngữ: | English |
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Springer
2015
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| Truy cập trực tuyến: | https://scholar.dlu.edu.vn/thuvienso/handle/DLU123456789/58925 |
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oai:scholar.dlu.edu.vn:DLU123456789-589252023-11-11T06:22:49Z Ethics, Law and Governance of Biobanking: National, European and International Approaches Mascalzoni, Deborah Moral and ethical aspects Biobanks Bioethics Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? 2015-10-21T01:35:29Z 2015-10-21T01:35:29Z 2015 Book 978-94-017-9573-9 978-94-017-9572-2 https://scholar.dlu.edu.vn/thuvienso/handle/DLU123456789/58925 en application/pdf Springer |
| institution |
Thư viện Trường Đại học Đà Lạt |
| collection |
Thư viện số |
| language |
English |
| topic |
Moral and ethical aspects Biobanks Bioethics |
| spellingShingle |
Moral and ethical aspects Biobanks Bioethics Mascalzoni, Deborah Ethics, Law and Governance of Biobanking: National, European and International Approaches |
| description |
Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it?
This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? |
| format |
Book |
| author |
Mascalzoni, Deborah |
| author_facet |
Mascalzoni, Deborah |
| author_sort |
Mascalzoni, Deborah |
| title |
Ethics, Law and Governance of Biobanking:
National, European and International Approaches |
| title_short |
Ethics, Law and Governance of Biobanking:
National, European and International Approaches |
| title_full |
Ethics, Law and Governance of Biobanking:
National, European and International Approaches |
| title_fullStr |
Ethics, Law and Governance of Biobanking:
National, European and International Approaches |
| title_full_unstemmed |
Ethics, Law and Governance of Biobanking:
National, European and International Approaches |
| title_sort |
ethics, law and governance of biobanking:
national, european and international approaches |
| publisher |
Springer |
| publishDate |
2015 |
| url |
https://scholar.dlu.edu.vn/thuvienso/handle/DLU123456789/58925 |
| _version_ |
1819811786162962432 |